Detalhe da pesquisa
1.
'My life is a mess but I cope': An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition.
Palliat Med
; 38(3): 379-388, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-38439152
2.
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders.
Palliat Med
; 38(4): 471-484, 2024 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-38481003
3.
Cognitive testing of the Children's Palliative Outcome Scale (C-POS) with children, young people and their parents/carers.
Palliat Med
; : 2692163241248735, 2024 May 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-38708863
4.
Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study.
Palliat Med
; 37(6): 856-865, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36978266
5.
Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's research involvement group and expert item generation.
Palliat Med
; 37(10): 1509-1519, 2023 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-37853579
6.
Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview study.
Eur J Pediatr
; 181(10): 3739-3752, 2022 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-35953678
7.
The 'surprise' question in paediatric palliative care: A prospective cohort study.
Palliat Med
; 32(2): 535-542, 2018 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-28627303
8.
Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use.
Palliat Med
; 30(10): 935-949, 2016 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-27247087
9.
Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members.
Patient
; 16(5): 473-483, 2023 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-37221441
10.
How do person-centered outcome measures enable shared decision-making for people with dementia and family carers?-A systematic review.
Alzheimers Dement (N Y)
; 8(1): e12304, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-35676942
11.
COVID-19: Impact on Pediatric Palliative Care.
J Pain Symptom Manage
; 64(1): e1-e5, 2022 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-35231592
12.
Inter-Rater Reliability of the Phase of Illness Tool in Pediatric Palliative Care.
Am J Hosp Palliat Care
; 37(10): 837-843, 2020 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-32189508
13.
Supportive care for children and young people during cancer treatment.
Community Pract
; 82(9): 28-31, 2009 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-19788121
14.
Knowledge, attitudes and beliefs about paediatric palliative care.
Ann Palliat Med
; 12(1): 10-12, 2023 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-36627857
15.
The use of rapid onset fentanyl in children and young people for breakthrough cancer pain.
Scand J Pain
; 17: 256-259, 2017 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-29229211
16.
Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: results from a London cohort study and international survey.
Neuro Oncol
; 18(4): 582-8, 2016 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-26459800